Home On Their Own

I’m at my parents’ house this weekend. I’ve been here quite a bit in 2025. In their early 80s, they have been having health issues for years, but this is the first year that we’ve seriously considered that living on their own might be just beyond their reach, especially since my mother fell and broke her femur last month.

However, nothing convinced my mother that she wants to stay in her own home more than two and a half weeks in hospitals and rehab. Although (or perhaps because) she worked in a hospital for over 40 years, she does not like being a patient, particularly not one who can’t get out of her bed unassisted.

So, she learned how to get up by herself, how to use a walker, how to transfer into the shower using a special bench, and how to pull on pants healing-leg-first. She allowed my brothers to carry her in a chair up the seven stairs into her house and acquiesced to hiring a home health aide to come to the house for four hours five days a week.

That lasted one week.

Having allowed this aide to make her breakfast, do her laundry, and clean her floors, my mother has determined that having her just two days a week will be adequate. She and my stepfather can manage the rest of the time on their own.

My husband continues to remind me that our parents are adults and can make their own decisions. And I’m working hard to stand back and let them.

It’s a little like parenting teenagers except I’m older and a little wiser. I think I know better than my parents, but I’m trying to be willing (along with my five siblings who seem much less controlling than I am) to let them call the shots and, as my oldest sister says, “let the changes be their idea”.

She’s right, of course.

When I look at my mother and her fierce determination to be at home and take care of herself, I know that I will be just like her in 20 years or so. I won’t want my kids calling the shots. I will need to see for myself when I’m out of my depth, and I’ll want to be the one to yell “help” when, and only when, I’m about to sink.

I don’t want them to get there, of course. I don’t want to watch my parents flounder, but who I am to determine how much struggle they can manage? Who am I to say when enough is enough?

I’m just a kid looking on, watching my parents navigate their reality.

And right now their reality looks like side by side rocker recliners in front of the TV watching cooking shows, Perry Mason, football, Jeopardy, and Wheel of Fortune. It looks like excitement over a chocolate shake or a delivered chicken chimichanga. It looks like rearranging the furniture to accommodate walkers and canes and oxygen machines. It looks like my brothers and sister-in-law dropping by several times a week to bring in mail and groceries, to pay bills, to manage household maintenance, and to simply check in. It looks like me coming on weekends to work on projects, to problem-solve, and to bear witness.

What it doesn’t look like right now is me taking charge, me kicking butts, me taking names.

It looks more compassionate than that — more understanding — more loving. It looks like running to Meijer two days in a row to get the items that weren’t on the list my sister-in-law took with her the day before. It looks like picking up a McDonald’s milkshake at 2pm and a Wendy’s Frosty at 5pm because I was asked and someone who is all but confined to a recliner doesn’t need my judgment. It looks like bringing all the towels in the house to the living room so that my mom can sit in a chair and identify which towels go upstairs, which go downstairs, and which go to the rag pile. It looks like making a pot of chili, instant chocolate pudding, and scrambled eggs and toast– “I’ll take mine with strawberry jelly.”

For a while last night I sat with my mom on the edge of her bed showing her how to operate the television my brother installed — how to use the remote, how to access Netflix, how to navigate with the Roku to watch her regular shows. She did a lot of nodding then asked me to write it down step by step, which I did. I placed the instructions, laminated with packing tape, on her bedside table under the remotes.

This morning I found them sleeping side by side in their recliners. Evidence suggests that my mom tried to sleep in her bed but just couldn’t get comfortable and so carried her pillow back to the chair where she finally nodded off. They were still sitting their unmoved at 11am when I finally decided to make them some breakfast, deliver their meds, and load my things into the car before my trip home.

My exit was made easier because my brother and his family showed up. I didn’t have to leave them alone in their chairs, even if I did know that that would be their eventual reality. I got to leave believing they were in good hands, not worrying if one of them would fall, if they would forget their meds or my stepfather’s breathing treatment.

I called, of course, when I got home. My mom picked up and said, “hold on a minute, let me get to my chair.” I felt myself get tossed into the bag attached to the front of her walker, heard the step-slide as she crossed the floor, and, moments later, she said, “OK, what’s up?”

I knew she’d have to get back out of her chair to heat up dinner, to change into pajamas, to go to the bathroom. I knew it was gonna be a struggle every step of the way.

Everything is going to be a struggle for a while, but they want to give it a try.

This is me trying to be ok with that.

Honor your father and mother. Exodus 20:12

Team Effort

Although my mother is in a rehab facility two miles from her home recovering from a broken femur and the surgery to repair it, although my stepfather needs almost ’round the clock support to manage his physical and cognitive health issues, although there are appointments on the calendar and decisions to be made, I returned home last week and went back to work.

I felt ok returning because my parents are in the hands of a very capable team.

Two of my brothers are moments away, able to (mostly) cover the day to day, but the needs are increasing as physical and coggnitive health diminishes, and it’s nearly impossible to manage all the pieces while you are running a business or managing a division. Another brother is a moderate drive away, and he’s not working at the moment, but he has a family, two grandbabies on the way, and commitments he made before the current status emerged.

Two sisters are states away — time zones away — and they chime in to group chats and email threads; one is spearheading the investigation into care options, the other is providing funds for incidentals. They both stopped their lives and showed up for a week last summer to offer support during the last high intensity moments. Our sister-in-law has, for over a year, been managing the lion’s share of doctors’ appointments and errand running.

Right now, my daughter is boots on the ground, going back and forth between her grandma and papa, filling requests, attending to medical needs, purchasing groceries, and doing laundry.

I’m not close enough to my parents to pop over, but in between answering emails, attending meetings, leading classes, and grading assignments, I field texts and phone calls from siblings, agencies, and, of course, my parents.

Each of us has a role to play.

We’re trying to determine next steps. Should they/could they be in assisted living — are there any openings? what is the cost? would they be together? apart? Could they/should they remain in their home — what supports would they need? how often? for how many hours? what is the cost? what changes would have to be made?

It’s an all-out team effort. And, thankfully, everyone is here for it. Because even though each of us has a whole life of our own, we are doing our best to share the load. This is not always the case, especially not in blended families.

We’ve seen it, haven’t we? Siblings who refuse to speak to one another because of something that happened in 1995, or 1974, or 2021. Children who won’t show up because of the ways they felt mistreated or neglected by their parents. The hurts are usually real and the feelings valid, and our family is not immune from dysfunction, so the fact that everyone is able to show up and contribute is a testament to the maturity, healing, and selflessness of each individual.

And we’re learning.

We’re learning about how memory loss can change personality. We’re learning how the feeling of helplessness can look like anger. We’re learning how to take phone calls in the middle of the night with understanding and compassion. We’re learning to take a step forward, not knowing if it’s the right step, but being prepared to change course at any time.

We’re learning about each other — how one is a quick responder, an in-the-moment solver of every kind of problem, a leader who can make the decision when faced with myriad options, how another is a patient presence, willing to just hang out during a losing football game, nodding off in a chair, but staying to the end, ready to go to the grocery store three days in row, willing to heat up a meal or help a senior pull on a pair of socks. A third consistently has a can-do attitude — I can run the vacuum, I can mop the floors, I can stay the night, I can try to bring some humor to the situation. The fourth speaks up for the parents — almost without fail — what do they want? what do they need? are they comfortable? are they able to be together? The fifth speaks sparingly, and sometimes just one-on-one, but she seems to be observing what is happening, offering what she has, and watching for how she can make a contribution. And the last? She has a lot of words — in emails and texts and phone calls and google docs. She’s sharing information like she’s getting paid by the word — documenting the moments of each day so that everyone is in the loop, sees what’s happening, has all the information.

It’s almost like a hiring agent built a team specifically for this task, like the members have been training for these roles their whole lives. The time has come, and everyone is playing their part.

Tomorrow, several members of the team will show up for an assessment by a home health care provider who will determine exactly what is needed, whether or not they can provide it, and what exactly it will cost.

When I called my mom today to ask how she is feeling about this meeting, she said, “hopeful.” She really just wants to be at home, and we really want to make that happen for her, but even though we have a whole team, it is hard for us — the adult children — to know what is best. So, we’ll see what the experts have to say — this provider, our mom’s surgeon, her OT and PT team. Then, with our parents’ input we’ll make a decision.

Then we’ll see how it goes.

Then we’ll communicate with one another.

We’ll decide whether to stay the course or change direction.

It’s gonna be a journey. It’s nice to know we’re in it together.

from the whole body…each part does its work. Ephesians 4:16

A Different Kind of Summer

I went back to work this past week after what was a very unusual summer — a summer that started with a week of dish washing in the desert of Arizona, transitioned to supporting some of our parents through their health crises, included my 40th high school class reunion, and ended with me transitioning into a new position at my school.

It was such an unusual summer that my suitcase stayed in some state of “packed” for the entirety of June and July, our garden was given over to monstrous intertwined vines of squash and cantaloupe bordered by overgrown rhubarb and zucchini, and I was rarely able to move my writing from my morning pages– scribbles of to-dos and emotion — to anything resembling a blog. My regular rhythms were disrupted.

It probably needed to happen — this season of go with the flow that included so many trips up and down the state of Michigan — which is breathtakingly beautiful in the summer — lazy hours on the beach, playtime with our granddaughters, laughter with former classmates, dozens of phone calls with parents and siblings, and a looser hold on all the anchors I’ve been gripping for years in my physical recovery — regimented bed times, a consistent morning routine, strict dietary guidelines, and a deep commitment to not only writing every day but also posting every week.

I think I needed this summer’s less-regimented experience to see that a looser grip is ok. I can relax a little bit. If I generally follow the routines that I have found work best to keep my inflammation and pain at bay, I can veer off that path from time to time and be fine. I’ve been a little afraid of that since I’ve been dealing with autoimmunity — afraid that if I don’t do everything correctly, I’ll end up in a flare. It’s a valid fear, because that sometimes happens (and it did happen a couple of times this summer), but holding too tightly to systems and regimens can also cause the anxiety that might lead to a flare. Maybe, I’m learning, taking a breath and veering off the path for a moment can be ok.

Because I veered off the path, I had countless hours with my mother as she cleaned, organized, and prepared her home for my stepfather’s return from an extended hospital stay. I had the opportunity — many times — to sit in my stepfather’s hospital room — witnessing his vulnerability, providing some consistent communication (even if I got on his nerves a bit), and watching him become someone I didn’t recognize, and then, someone that I did. I had time with my in-laws who are also navigating difficult waters — joking a little with my father-in-law and sharing some private moments with my mother-in-law. We enjoyed a few precious days with our granddaughters, feeding alpacas and goats, walking to playgrounds, watching movies, and reading stories until we heard, “I’m so tired, can we go to bed now.” Finally, my husband and I enjoyed four quiet days away — alone, just the two of us — to explore nature, breathe clean air, and celebrate the miracle of thirty-four years of marriage.

I didn’t get every weed out of the garden. I didn’t, as I’d hoped, dive back into The Artist’s Way, and I didn’t meet my writing goals, but I logged so many memories that I will be carrying with me as I head into the school year.

This summer was all about remaining flexible — going with the flow, changing plans at the last minute, missing a day or two of yoga, living without a decent cup of tea once in a while, staying up a little later, getting up a little earlier, and being mostly ok.

And, when I haven’t been ok, I’ve used the tools I’ve learned over the last ten years to recover — epsom salt baths, lots of water, ice packs, Motrin, and rest.

I know the value of staying on the path, I’m learning the richness of wandering away from time to time, and I know the potential outcomes of both ways.

I’m mostly back on the straight and narrow; I need to be as I learn my new role at school — more on that next time.

10 Years Later, #3

I’ve just spent the last five days lounging around the house, moving from bed to couch to chair to bed to couch much like a cat thanks to the MLK weekend followed by a few days of below-0 wind chills. I have accomplished very little since last week, and it’s been lovely. It wasn’t always easy for me to be inactive — in fact, it was downright anxiety-inducing. Being busy was a coping strategy, but thanks to a chronic illness, a lot of therapy, and a new way of living, I am going more and more comfortable with being still. Below you’ll find a post from the beginning of my journey, when I had not yet learned to appreciate stillness.


The Backstory on Doing

 ~ KRISTIN ~ EDIT”THE BACKSTORY ON DOING”

I got my first job when I was 10.  No, it wasn’t it in sweatshop. My neighbor called my mother and asked if I could babysit her two sons while she and her husband went out.  They would be home by midnight.  Well, they weren’t home by midnight.  They were gone for seven hours and, at the extravagant rate of $0.50 per hour, I made a whopping $3.50.  It’s true. I continued to babysit for that family and then practically every family in my small town of 4,000 until I went to college.

My first tax-paying job was at a small dress shop on the main street of my home town.  I vacuumed, opened shipments, attached price tags, washed windows, etc.  This manual labor earned me the hourly wage of $2.00.  I worked Monday through Friday after school from 3:30-5:00.  Do the math — I was really pulling in the dough.

When I got my driver’s license I could venture to the neighboring town where I became employed at McDonald’s.  I climbed that ladder from mop-girl to fry-girl to order-girl to drive-thru-girl in no time flat.

In my senior year of high school I got a second job opening and closing at a public school day care center.  I arrived at 6:00 am to let the little critters in, went to school mid-morning, then returned after school to wave goodbye and close the place down.  Somehow I managed to work there, keep my job at McDonald’s, and graduate!

When I went off to college I worked several places — day care center, cafeteria, and development office.  Since then I have been a camp counselor, residential care staff, teacher, freelance writer, census worker (seriously), and who knows what else.

I think you get the point.  I have, almost always, had a job.  I took a brief sabbatical when my kids were babies.  I was blessed to stay home with them for seven years, but even then I was always busy baking, cleaning, homeschooling (seriously), leading Bible studies for women and teens, writing chancel dramas and worship songs, and (wait for it) becoming a Mary Kay consultant.

For the third day in a row I am going to say, I am not accustomed to being still.  Ten years ago we moved to St. Louis so that my husband could go to the Seminary.  For the next four years I was the primary wage earner in the family.  By the time he became a pastor,  I had become not only a teacher and department chair, but also the curriculum coordinator and member of the administrative team.

It is in my DNA to be doing.  I see opportunities and know I can meet them.  I see gaps and I know I can fill them. I see problems and I know I can fix them.  So when my husband took the job in Ann Arbor, I immediately started looking for what I could do!  (See yesterday’s post to more effectively roll your eyes at this.) I found several options.  I won’t get into all of those now, because I am trying to be still! (I told you this was going to be a challenge for me.)

The words from this morning’s Bible reading were written just for me, “Therefore I tell you, do not be anxious about your life, what you will eat or what you will drink, or about your body, what you will put on, [or dear Kristin, what you will do]…Look at the birds of the air: they neither sow nor reap nor gather into barns [they aren’t busy doingthey are being], and yet your heavenly Father feeds them.  Are you not of more value than they? And which of you by being anxious can add a single hour to his span of life?…But seek first the kingdom of God and his righteousness and all these things will be added to you.” (Matthew 6: 25ff)

Doesn’t get much clearer than that, does it? I am a child of God. That is my identify. My identity does not come from my work — from what I do.  It comes from whose I am. I continue my mantra. I am a human, being HIs, trusting that He will feed me — literally and metaphorically. I will not be anxious. I will just be.

Finding Space for Breath

When I wrote The Battle is On in August of 2014, I shared what I understood about autoimmune disease. I was new to the game (just a year or so in), and I was relying mostly on what doctors were telling me and what I was reading online. I wouldn’t say that I was wrong, but I would say that my understanding of autoimmune disease, from my perspective, based on my experience, has shifted greatly since that time. The longer I live in this body, the more I learn. In fact, my thoughts on the subject shifted again just yesterday.

Let me see if I can give you a picture of what I mean

I am confident that somewhere in the pages of this blog I have at least suggested that the current state of my body is a function not only of heredity and disease but also of the ways I have lived my life in these past fifty-seven years. Whether it came from my paternal grandmother, who had rheumatoid arthritis or from my mother, who has suffered with myriad maladies including persistent issues with her right hip (as do several other members of the family), I somehow inherited (and then passed on) the hla b27 genetic marker that is associated with spondyloarthritis which includes psoriatic arthritis, Sacroiliitis, and other autoimmune disorders.

Ok, so I had the genetic marker, but I also began a pattern of persistent emotional distress in my childhood and adolescence; such a pattern can heighten the likelihood that one develops autoimmune disease. Now, I wouldn’t say that I had a terrible childhood or that my parents subjected me to any kind of trauma. However, their divorce and the subsequent separation from my father was, to me, devastating. I did not know how to process the emotions I was feeling, and my adolescence was characterized by what I would now describe as raw, untended to emotion that was trying to find comfort or at least an outlet.

Over the years, I developed many strategies for dealing with that distress — lashing out, academic achievement, an eating disorder, and finally, a survival strategy emerged — my butt-kicking, name-taking persona. This girl set her jaw, clenched her fists, and got shit done. If emotional pain surfaced, she processed it through anger and aggression — at herself, at her family, at anyone who happened to get into her path. If things were moving smoothly, she was fine — reliable, productive, and focused — but toss in the unexpected — a change of plans, an alternate view, a noncompliant child or student — and she resorted to her soldier stance, bracing her body, lashing out with her words, and forcing everyone back in line.

It was a strategy that carried me through many years, but it led me to resist compassion, perspective, empathy — not only was I unlikely to give those things to others, I was less likely to receive them for myself. Now, let me say here that every soldier lets her guard down from time to time, and moments of vulnerability crept in — times when I held my children as they cried, when I recognized defeat in a student, when I allowed myself to share my pain with others — but those moments were the exception, I am afraid, and not as much the rule.

And while this soldiering lifestyle was an “effective” strategy, every choice has unintended consequences. I wish I was scientific enough to explain how my butt-kicking, name-taking persona required my body to produce adrenaline and cortisol and how, over time, the abuse of these hormones increased the likelihood that I would experience autoimmune disease, but I have an education degree, not a medical degree.

Suffice it to say, that what I have learned over the past 10 years, is that, at least in my body, the most effective strategies for reducing my experience of autoimmune symptoms are not medical, but they are a re-learning of how to manage my emotions, of how to live my life in a way that reduces or mitigates the adrenaline and cortisol in my body.

If you have followed my blog, you already know that pharmaceuticals were not the answer for me, although I tried many over the course of 3-5 years at great expense and with significant side effects. In fact, the only pharmaceutical I take now is one that I must take to prevent a flare of the ocular herpes I acquired while on a course of steroids. Sigh.

Because I was non-responsive to pharmaceutical interventions, all doctors except my ophthalmologist dismissed me as “not having autoimmune disease”. [For the record, my ophthalmologist shakes his head at this when he sees the evidence of autoimmunity in my eyes.] This dismissal, though, was a blessing, because it led me to explore other options for improving my health — options like submersing myself in a 95 degree salt-water therapy pool (which I highly recommend for those of you who are in the midst of a flare), practices like yoga and walking that allow my body to de-stress, habits like eating unprocessed foods that are free from gluten and dairy which often trigger symptoms in my body, and routines like seeing a therapist to learn how to more effectively deal with emotions.

And while I didn’t start this blog for the purpose of improving my health, it has had the unintended consequence of giving me a space to process so many of those emotions that little-girl-me felt, that soldier-me suppressed, that mom-me didn’t feel safe exploring. And, in the unearthing of these emotions, in the vulnerability of exposing them not only to whoever wants to read them, but more importantly to myself, I have created the space within my body to breathe.

And you’d be surprised the difference a little breath can make.

I’ve been learning about breathing since I started practicing yoga several years ago. At first I was like, what? we’re gonna just sit here and breathe? I was a former distance runner, if you remember, and I was used to pounding out 4-6 miles on a regular Tuesday, so this sitting still and breathing thing was very foreign. But, I was in a room full of people who were sitting there breathing, so … I breathed. Sitting still. For long periods of time. And, though I was unsure it was doing any good, I had to admit I felt better after yoga. And, I continue to practice yoga almost every morning for that reason.

But yesterday I took this breathing thing to the next level. A friend of mine, Lynnette Rasmussen, an experienced occupational therapist and PIlates instructor, was offering a virtual breathwork class and a handful of friends and I decided we would attend. I expected more relaxation but not much else.

I was surprised by the difference a little breath could make.

Lynnette guided us through an “ancient pranayama practice that uses an active 3 part breath that continues for 25-30 minutes, followed by a 10 minute relaxation” intended to “relax the mind and reach buried emotional or physical blocks and bring them to the surface.”

I was certainly unprepared for what I experienced — at first it was awkward, this weird breathing strategy, but then, once I found the rhythm, it was calming, and more natural, but then when we entered the relaxation — man, it takes great vulnerability to tell you this – I felt healing electricity coming through my hands as they rested on my body. I felt a deep understanding that God alone — not my practices, not pharmaceuticals, not pain clinics, not anything else — has the power to heal me. I rested on a yoga mat on the floor receiving any kind of healing that He had to offer me.

And that is what I have really wanted all my life — to receive the healing that only God can provide — and to accept that He will provide it in His time and in His way — not as I demand and not in a sense that I have to “believe to receive” but just in a way that He will surprise me with.

And over these last years, He has continuously surprised me — by closing medical doors, by tossing me in a warm salt water therapy pool, by showing me that my strength is not in a set jaw and a clenched fist but in vulnerability, by reminding me through a zoom room that He can, He is, and He will heal me day by day by day, sometimes with the simple power of breath.

I am overwhelmed by His grace.

Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen

Ephesians 3:20

10 Years Later #2

The battle is on

** I first wrote this post in August of 2014 — early in my journey with autoimmune disease. I’ve learned a lot since then, but most of this remains true. I may not feel as bold and cocky as I did the day I wrote this post, but chutzpah is still at my core. [You may note, if you read last week’s “vintage blog” that I have tried a new format here – pasting the old content into a new blog post and making just a couple updates. I don’t think I will record these older blogs; I’ll let you imagine what my voice sounded like back then. In some ways I feel like a whole different person now and don’t feel my “today” voice would fit with “vintage” me.]

“Autoimmune diseases affect approximately one in ten individuals, and their burden continues to increase over time at varying rates across individual diseases.” (US Center for Disease Control and Prevention). [Statistic updated 1.11.2024] Among the autoimmune diseases I’ve heard of are rheumatoid arthritis, diabetes, celiac disease, lupus, Sjogren’s syndrome, and the ones that I’ve become more familiar with — psoriasis, psoriatic arthritis, scleritis, and iritis. No one is really sure what causes autoimmune diseases.  I have a genetic marker that is often linked with the type of disease that I have. Some people believe the diseases have links to GMOs.  The CDC suggests that they may be linked to previous infection. 

Whatever the case, autoimmune diseases are a malfunction of the little soldiers in our bodies that fight disease. They are a bit trigger happy, you might say. They attack when there is nothing to attack. They are always running around fighting something in our bodies, even when there is nothing to fight. In my body, they gather around my joints, in my skin, and in my eyes. They gather, they shout, they fire, they fight!  

You may have noticed when you are sick, and these little soldiers are fighting their hardest, you have to go to bed and rest. They wear you out! You feel achey all over, you have a fever, a sore throat, you feel blah. That is what autoimmune disease feels like most days.  

One way to treat an autoimmune disease is to take immunosuppressants — Enbrel, Humira, Remicade, etc.  These drugs tell the little fighting soldiers in your body to “be ‘at ease’, the infection you are imagining is not really an infection. It’s a hallucination, so calm down.”  That is all well and good until there is an actual infection. Because the soldiers are ‘at ease’ according to their orders, little enemies can infiltrate the system virtually undetected. 

Ladies and gentlemen, I have been infiltrated. Last week, my dear husband had a minor cold — a little sniffle here, a little sneezing there. I felt great. I washed the sheets. I washed my hands. I kept my distance.  But, some of those little enemies abandoned him and scurried over to me. They hid for a couple of days, scoping out the opposition. But they could see that my soldiers were inside their tents, under orders to “be at ease”.  They decided it was safe to ‘be fruitful and multiply’.  

So, I feel a little like I’ve been hit by a truck.  

Not to worry. Those enemies underestimated the host body. I am not one to be messed with. I dragged myself out of bed this morning, took some Emergen-C, some Dayquil, drank a kale-hemp-berry-almond-flax-chia smoothie, made some strong black tea, and looked those little buggers in the eyes as though to say, “Come at me.”  

I immediately felt a scurrying and fleeing. These little infiltrators now realize that I have had serious disease fighting training in the school of motherhood and the advanced training of teaching in a high school (with juniors — ew). Besides, I have God on my side. I am assured a victory. I am not going to lie down and be beaten. I have taken out my earrings, pulled my hair back, and I am ready.  

I bet even you can hear them fleeing.  

Though an army besiege me, I will not fear; though war break out against me, even then will I be confident.

Psalm 27:3

Process(ing)

We’re two weeks away from Christmas Break, and I’m having my seniors write a personal essay. This essay could be used for a variety of purposes — to submit with a college application, to enter a scholarship contest, or simply to explore one’s own identity.

The students read and analyze several models, we practice using sensory language, and then we prepare to write. The first step is to choose from a variety of prompts such as “describe a time when you overcame a challenge” or “tell us about a time you stepped up as a leader”. Then, I direct them to identify a trait they want their reader to recognize in them. Are they hardworking? resilient? creative?

The big lift comes next. Students must respond to the prompt they have chosen while also displaying the strength they have selected by describing a scene — a snapshot or highlight tape — from their lives in which they have embodied that characteristic.

As has been my practice for going on twenty years, I write alongside my students, modeling my process for them in real time so that a) they can see an “expert” at work, b) they can see that even “experts” struggle and fumble, and c) so that they can acknowledge that even for “experts” the writing process is messy, laborious, and non-linear.

This past week, I was doing that modeling when I wrote about the time almost 10 (TEN!) years ago when I left my classroom in St. Louis convinced that I would likely never teach — at least not in a high school — again. I was reading this highlight tape to my students, describing how I tearfully carried a milk crate out of my room, and they looked at me with blank faces. What was I talking about that I might never teach again? I’m standing right in front of them — teaching! — and I’ve been in this classroom since they were freshmen. Was this story supposed to be fiction?

And, you know, sometimes I start to believe it is — maybe I wasn’t really that sick. Maybe I didn’t need to step away from my work. Maybe I don’t have symptoms right now. Maybe I’ve made it all up.

I was feeling that way last night. It was my youngest daughter’s and my youngest granddaughter’s birthday yesterday. I was on the phone wishing my daughter a happy birthday, struggling to sustain a conversation after 5pm on a Friday, “Happy birthday! What did you do today?” She shared how she had spent her day and asked what we were up to this weekend. I explained that her father had travelled to Cincinnati for her niece’s birthday, but that I didn’t have the gas in the tank to go.

“Oh? What do you mean?”

“I just find that in December I have very little margin to do something like a weekend trip.”

“Oh, why? Is it because it is the end of the semester and you have a lot of papers to grade?”

“Well,” I struggled to articulate the thing I have been trying to articulate for going on 10 years — that it doesn’t matter if I have a pile of papers in front of me or not, I am just on E, and E won’t get me to Cincinnati.

The same thing happened when I was FaceTime-ing with my six year old granddaughter. My husband called from Cincinnati to let me watch her open her gifts. She was sitting in her Grogu chair grinning and talking as she tore the paper. The rest of her grandparents, other family members, and some friends would be there soon for a party with pizza, butterfly decorations, and, of course, a purple cake. I watched, smiling, but internally I was interrogating myself, “Seriously, you couldn’t find it in you to go to Cincinnati for one weekend? It’s your granddaughter’s birthday!”

I do this sometimes, I question whether I really need the weekend at home, or if I am just being selfish.

I logically know the answer — even without 4 hours in the car, a change in routine, sleeping in a different bed, and the drain of social interactions, I woke up this morning with a splitting headache and an electric/IcyHot heat in all of my joints from my toes to my neck. During this time of year, it takes a whole weekend to recover from a week in the classroom. I will spend a couple hours this morning writing, then I will go for a long walk followed by an epsom salt bath. Hours might be spent reading a novel or watching The Crown, and I’ll have to somehow fit in about an hour of prep time so that I’m ready to teach my students on Monday. Sunday is more rest — Zoom time with our small group followed by worship and another long walk, followed by more writing and resting, and prepping for the start of the week.

When I interrupt that rhythm, like I did over Thanksgiving, I walk into Monday less resilient than I need to be — I am more likely to be reactive, I am less likely to be on my A game. I will likely miss things — like a small cue that someone is angry and tempted to fight, that another is sad and needs someone to listen, or that my room is too hot or too cold or that someone in my room didn’t get breakfast or lunch. I will be more likely to get an inflammatory issue like pain behind my eye or a headache or extreme fatigue that has me wondering how I drove myself home.

While I can occasionally take the risk and do something social on the weekend, it is really best if I stick to the routine which means saying no to fun opportunities like a whirlwind trip to Cincinnati.

You might ask if I should continue teaching if it costs me weekends with a granddaughter or my parents or our friends? The answer is still yes, absolutely yes.

For one thing, I will see that granddaughter and her sister in three weeks. That doesn’t make up for missing her birthday, of course, but I do get time with both of our grand girls on a fairly regular basis. We FaceTime and send letters, and, honestly, their lives are busy, too. I miss them, but I’m not sure I would see them more if I wasn’t teaching.

And, the reason I continue in the role I have now is because it gives me life. Leaving my classroom in June of 2014 was only slightly less than devastating because my autoimmune disease is absolutely real — I was flaring so badly in that season that I could barely function. I would have never left the classroom if there was any other option.

The six months that I was unemployed and the slow crawl back was a very difficult time. In my mind I was sick, compromised, washed-up, old, past my prime. As I regained my health, as I gradually built more teaching back into my life, I regained confidence and a sense of purpose.

I am not a perfect teacher — I don’t always have the most engaging activities or the cutest classroom decor. I sometimes lose my sense of humor, overuse sarcasm, and fail to give students the one-on-one attention they deserve. Despite all that, I am my best self when I am connected to education, for now that means in the classroom, particularly a high school classroom, especially in a context where I can call out injustice and work to bring a more equitable experience for my students.

When I get to spend my days being the best version of myself, I get more moments of sharing that best version with the people that I love — my husband, my children, and my grandchildren. For a few years there, I think that much of what they got from me was shrouded in self-doubt, self-pity, and an overwhelming sense that I was past my prime.

On Monday, I’ll share my second highlight tape with my seniors, the scene where I carry my items back into the classroom I work in now. I’ll share a glimpse at the slow crawl back, but I’ll focus on the triumphant return. Then I will prod, cajole, and cheer them as they write their own highlight tapes. I’ll nudge them to add more sensory detail, I’ll celebrate their risk-taking, and I’ll gently introduce MLA format and model Standard Academic English norms. I’ll do my best to help them finish strong.

Then, near the end of December, I’ll take a break to catch my breath, and then I’ll pack my bag and head to the land of grand girls where we’ll snuggle, do crafts, eat yummy foods, watch movies, and giggle. I’ll tell them how proud I am when they read hard words and ask good questions — they’ll get the imperfectly best version of me because that is what I am right now.

And for this I am thankful.

give thanks in all circumstances…”

1 Thessalonians 5:18

Coronavirus Diary #35: Two and a half years later

click the arrow to listen

I was all set to get rolling again last Monday. My lunch was packed, my clothes for the day had been selected, and my lesson plans were ready to go. I got up at 5am, as usual, and since I had been having some mild cold symptoms over the weekend, I decided to take a Covid test — for the third day in a row — just to be safe.

I swabbed, I swirled, I tapped, I put three drops in the chamber, and then I set the timer for 15 minutes.

While I was waiting, I took some cold medicine and moved through my routine as though I would be out the door in just a little while. However, when the timer dinged, I saw the faintest line ever. I checked the packaging and consulted my husband before I was convinced that yes, a very faint line is indeed a positive test.

Then I started the texting — the assistant principal in charge of substitutes, the principal, the director of HR, my student teacher.

They were all compassionate, of course, saying “Take care of yourself!” and “Get plenty of rest,” but all I was thinking was, The last thing I want during the fourth week of school is to miss a whole week!

But these things are sometimes outside of our control.

So, for the past week, I have not been firing on all cylinders. No, I have been in bed. I have slept 10-12 hours a day, mustered the strength to make a pot of soup, then rolled back into bed to read a novel, falling asleep at intervals. I’ve watched mindless television, scrolled social media, worked on crossword puzzles, and done the bare minimum to keep my classes in motion in my absence.

I’ve written lesson plans and sent them to my student teacher and my substitute. I’ve graded the work that has been turned in. I’ve responded to student emails, and I’ve replied to texts.

But mostly, I’ve rested and slept, and it’s paying off.

Over the past several days, I have gradually regained strength, and I plan — again — to get rolling on Monday.

After such a long absence — have I ever missed a whole week of school? — I will have to do some work to reconnect, to reset the climate, to re-establish my expectations. Although my student teacher has been at the helm for a week, I know there has been some confusion and some frustration.

Job one will be to hear from everyone — what did I miss? what do you want me to know?

Job two will be to provide clarity and reassurance — Yes, this is what we are working on, let me show you what it should look like, we’re all going to get through this together.

I’ll be doing all this in a mask, of course, because if you’ve been home with a positive case, and are symptom free after five days, you can return to real life, as long as you mask for 5 more days. Some of my colleagues have been masking all along — a few students, too. It’s not a bad idea, to continue using that precaution. I have opted to go mask free, even in my classroom because a) the mask is hot, b) I believe students hear and understand better when they can see my face, and c) two and a half years later, I just want Covid to be over.

This past week has been a reminder that it is indeed not over.

We’d been vaxed and double-boosted, of course, but I’d been pushing off the latest booster for a weekend when “I don’t have anything going on.” Sigh.

We’d had a bit going on, of course. The week before we tested positive, my husband and I had been at a conference with a couple hundred people. Later that week we had attended a celebration dinner with a couple hundred more. In neither setting did we mask. In fact, both events were rich with people we hadn’t seen in a long time, so we hugged, we chatted, we laughed.

Did we catch Covid at one of those events or just in our normal everyday interactions with students and coworkers? It’s hard to tell, but catch it we did.

As someone who experienced Covid early on — in the fall of 2020 — I will say the second time wasn’t easier. In fact, I think I was hit harder — more symptoms, more severe fatigue. Perhaps because we are vaxed, we were able to recover at home and didn’t have the severe symptoms that sometimes send folks to the hospital. For that, we are thankful.

But we still missed out — on a week of work, on several appointments we’d had scheduled, on a visit from our granddaughters. That last one hurt the most.

Nevertheless, we are on the road to recovery and hopefully ready to merge back into reality.

And, for the foreseeable future, reality includes Covid.

I’m obviously still trying to figure out what that means for me. For the coming week, at least, I’ll be masked in the classroom and I will stay away from any type of gathering, but after that, will I resume living as though we are post-Covid when the last week as taught me that we certainly are not?

I want to say that I have been transformed, that I will consistently mask and avoid large gatherings, and maybe I will, at least for a season, but my guess is that as the memory of this past week fades, I will likely gradually ease back “normal”. I’m not sure it’s the wisest course of action, though, so I wouldn’t mind if you joined me in praying about it.

If any of you lacks wisdom, let him ask God, who gives generously to all without reproach, and it will be given to him.

James 1:5

Rest and Return

Click the arrow to listen to this post.

The summer is winding down and I (along with teachers across the country) am starting to move toward the classroom.

Feeling truly depleted at the end of last school year, I spent the first two weeks of summer break at home. I gardened, slept late, wrote a teeny little bit, read, walked, and cooked.

And then, when I was somewhat revived, my husband and I boarded a jet and headed west. We alit in the land of palms and headed to wide expanses of beach, spread out matching beach towels. and spent hours reading, sleeping, chatting, and staring in awe at the waves and the sky. We wandered inland and wondered at the mountains and the forests then returned to the beaches — some tame and populated, some rugged and bare.

We ate well, slept long, and walked for miles and miles.

We breathed deeply. We laughed. We restored.

When our vacation was over, he reported back to his responsibilities, and I returned to rest.

This past week, I found my way back to my desk and started to consider and prepare for the roles I will carry this fall. It will be my third year at my current school after a long season of physical and mental recovery, and it will be the most challenging yet.

Earlier in this blog, I have elaborated on the fact that many years of pushing too hard and failing to take care of myself or process any emotion had sidelined me from the classroom for several years. In 2020, I felt called back, and because we were in the midst of a pandemic, I had the privilege of easing back in through a year of teaching virtually followed by a year of some in-person and some virtual learning. I was able to get my feet under me with mostly no physical or emotional consequences until the very end of last year when my body started waving warning flags.

Those flags reminded me to fully lean into my summer, and I have. I have put puzzles together, crocheted, and binge-watched. I have rested fully, and now as reminders of all I have committed to start pinging on my phone, I am both exhilarated and anxious. I have added some new roles, and I am wondering if I will truly be able to manage it all.

I know for sure that I can manage the first responsibility, which is the one I have had from my first day at Detroit Leadership Academy. I am the senior ELA teacher, focusing on building skills that will enable my students to experience success after graduation. Our research projects focus on career and college. Our writing includes college essays and resumes. We practice academic reading, writing, discussion, and presenting. The goal is that our students will have the opportunity to choose — college, career, military, or trade school. I love this role — in many ways it is an extension of what I did in my previous classroom position, and I am thankful that I am able to carry those skills forward to support another community of students.

I also know that I can handle the second responsibility which I have had for a year now. I am our school’s Master Teacher. We have instructional coaches in our building who work directly with teachers to improve instructional practices; that is not my role. My role is more to be an exemplar and an encourager. Teachers can pop in my room and ask a question, check out my white board or room arrangement, complain about a policy, vent about a student, or ask for a snack. I love this role, too. Because I’ve been a teacher and a mom across four decades, I have seen some stuff, and not much surprises me. I can typically remain calm and objective, which is what less-experienced teachers often need.

The above two roles are familiar and natural to me, but like many teachers throughout their career, I have been offered some additional responsibilities that will absolutely stretch me in the coming year.

The first of these is one I volunteered for. I will be participating in a year-long educational fellowship wherein I will work with teachers across the state to examine educational policies and practices, do research, and work with lawmakers and constituents to enact change. I am very excited about this opportunity, which will give voice to my passion for educational equity, the key focus of this fellowship.

The second new role is to be our school’s reading interventionist and to bring a new reading program to the building. I will have one period a day with 10 freshmen who have demonstrated reading skills 2-3 years (or more) below grade level. I am being trained this week in strategies that have been demonstrated to decrease/eliminate that gap in 20 weeks of daily instruction. I am fully behind this initiative. In fact, I asked for a reading interventionist after seeing evidence of weak reading among my students. Because of my Lindamood-Bell experience, I am a solid choice (at least initially) for this role, and I know I will love watching my students develop their reading skills.

Even though I am passionate about each of these roles, they are adding up! And I haven’t even told you the last one.

After I had already accepted all of the above positions, and had begun to wrap my mind around what they would each entail, I was approached by our director of human resources and asked if I would take on an uncertified colleague as a student teacher.

Let me pause for effect, because that is what I literally did when I got the call. I sat with the phone to my ear, breathing silently.

I’ve mentioned before that 2/3 of the teachers in our building are uncertified — most, like this friend, are working toward certification. Many, like this friend, will eventually need to do student teaching. If she can’t do the student teaching in our building, she will find a different school to accommodate her, and then we would be down one more teacher.

I know it is not my responsibility, but I am the teacher in the building with the appropriate certification to supervise her, and I have had student teachers before. I believe we will work well together and that the experience will be successful, but it is a large responsibility on top of an already full load.

This is not uncommon for teachers. In fact, I am not unique at all. Teachers manage their classrooms, provide excellent instruction, sit on committees, volunteer for study groups, and support their colleagues. They coach, they work second (or third) jobs, and they also have lives away from school that include myriad challenges and responsibilities.

It’s not uncommon, yet although I am excited to get started in each of these roles, I do have some anxiety. This is the most I have committed to since the 2013-2014 school year — the year that I requested a reduced load because I was suffering with pain, extreme fatigue, and myriad other health issues, the year before I left my classroom for what I thought was the last time.

I’m not the same person I was then. I have learned how to care for my body. I am learning strategies for managing my emotions. I don’t have teenagers at home. I no longer have pets to care for. And still, it’s going to be a lot.

So here I am recommitting to my best practices — I will continue to write, to do yoga, to walk, to rest, to puzzle, to crochet, to read, and to meet with our small group. I will go to my physical therapy, chiropractic, and (now) acupuncture appointments. I will eat the foods that make me feel well and avoid those that don’t. I will limit other commitments.

More importantly, I will pray, and I will trust that God has provided me this next chapter and all the opportunities in it and that He will carry me through it all so that I can be present and fully engaged with those who are counting on me, because they truly are counting on me.

And really they are counting on the One who lives in me — the One who sees each student, each teacher, each parent, the One who knows each of our names, the One who is faithful, the One who is answering before we even use our breath to ask, the only One who can really be counted on

I may continue to feel anxious, but when I do, I will try to remember that He’s got me and all of my responsibilities in the palm of His hand.

The One who calls you is faithful, and he will do it.

I Thessalonians 5:24

A Limit Exists

Please forgive morning voice if you choose to click the arrow above.

Eight years ago, I closed up my classroom, thinking I would never go back. I was sidelined due to chronic health issues, and I was headed for the couch. For six years — yes, years — I attended to my recovery, slowly crawling my way back, Then, in the wake of the George Floyd murder, I found the courage to believe I might still be able to make a difference in the lives of kids, and I started applying to high schools in Detroit.

When I took my current teaching position two years ago, it was an experiment. My husband and I, knowing how ill I had been, decided I should give it a full year to see how my body managed the stress. My heart was very willing to provide excellent instruction to historically underserved students, but we had no idea if my body could handle it.

For the first year, my body did just fine. We taught the entire year over Zoom, so the physical toll on my body was actually quite minimal. I would drive to the school in the morning, zoom with students for a little over an hour, stand and stretch, do another hour, go for a lunch time walk, teach one more class, then drive home. On alternating days, I had time for planning and grading. In the world of teaching, this load was light. Compared to other situations during Covid, where teachers had both live children in the classroom and students zooming in from home — my load was extremely light, and I knew it.

At the end of last school year, my husband and I remarked that my body had handled the transition and the new environment well, but it had not been a true test of whether or not I could handle full time teaching. We wouldn’t know that until I taught in-person classes with real, live students.

That is what I have been doing this year. I have driven to Detroit, met my students at my classroom door, and managed their learning, their emotions, their behaviors, their interruptions, their questions, and their concerns, along with my own inside an environment that is mostly consistent but that frequently has unexpected interruptions — a fight among students, a quick transition to virtual instruction, a building in need of repairs, or an immediate shifting of plans due to staffing issues. Much to my students’ dismay, I have taken only one day off this year because I have been healthy and energized, and my passion for bringing high quality education to my students has not waned.

I have written curriculum, contacted parents, attended meetings, collaborated with colleagues, and attended events. I have been stern, silly, serious, and — on occasion– sarcastic. I have fist-bumped, high-fived, hugged, and danced with my students, and for the most part, my body has come along for the ride.

I have been thrilled, in fact, by my stamina, and I have credited this phenomena to the years I have spent learning to care for my body, to the team that keeps me well, to the yoga I practice every morning and the walks I take with my buddy at lunch time, to my dietary choices, to my writing routine, and mostly to the grace of God. I have been riding the wave all year thinking, “Man, I was really ready! I am doing good in the classroom! I am not finding any limits to my ability to be effective here!”

But, friends, it turns out that, contrary to Cady Heron and the laws of math, the limit does indeed exist.

I mean, I knew it did, that’s why my husband and I don’t make excessive plans on the weekends but instead schedule lots of recovery time — time for rest, writing, reading — so that my body can repair. We don’t make a ton of plans – we don’t have a lot of people over, we go out with others only sparingly, and our idea of entertainment is streaming something from the comfort of our own couch. We do this because one thing we have learned since the beginning of this journey is that my body needs loads of rest.

I got plenty of rest all last year when we were teaching virtually. This year, too, since we moved back and forth between in person and virtual instruction at fairly regular intervals, my load was intermittently lightened. My body continued to be fine.

When we returned to school on May 2, after being at home for over a month and began the home stretch, I was operating under the false assumption that I would be able to manage the end of school and all the activities involved in the life of seniors and their teachers without any consequences. In fact, I was so confident that we also fit in dinners out with friends, a couple trips out of town, and a speaking engagement in addition to my teaching responsibilities which included leading a training session, attending prom, being present for a parent meeting, and helping with graduation.

And, as you might have guessed, I discovered that I do indeed have a limit.

What happens when I’ve crossed that limit? The warnings signs are subtle; I get a little snippy with a student, a coworker, or my spouse. I wake up feeling heat radiating beneath my skin, especially around my joints. A nagging pressure forms behind my left eye. I get a headache.

If I notice these warning signs, take a little Motrin, put my feet up, attend to some self-care rituals, and sleep, I can avoid larger consequences. But when you think you are invincible, you aren’t really looking for warning signs. So, you just keep stepping, kicking the occasional butt, taking the occasional name, and then out of nowhere, you overreact to an inconvenience or a miscommunication.You start to cry in the middle of a song or while listening to a sermon. You sleep 10 hours and wake up feeling nauseous, like you’d better not move or you will surely throw up.

And it all comes back — remember that time when you had to leave your career because you kept stepping instead of heeding the warning signs and taking care of yourself? Remember all those months you sat on a couch watching Law and Order because you did not even have enough gas in the tank to meet a friend for lunch? You wanna go back there?

No. I certainly do not.

I was built to teach, and I love working in the environment I have found myself in. I do not want to go back.

So, what’s the answer?

I have just over one week left before my summer break starts — a summer break where I will rest, garden, travel, see family and friends, and do a little bit of school work before I head back next fall. I’ll have a slightly lighter teaching load next year, but I will have a student teacher, I’m participating in a fellowship, and I will be facilitating reading interventions for a small group of students.

Yes, it does indeed sound like a lot.

Is it over my limit?

I don’t think so — not if I remember that there is indeed a limit. Not if I remember to take care of myself. Not if I remember that this privilege can disappear if I am not diligent about maintaining boundaries, taking rest, and lifting up the things I cannot manage to the One who indeed has no limits.

Come to me, all you who are weary and burdened, and I will give you rest.

Matthew 11:28