Finding a Footing

At the end of the last school year, as I waved goodbye to students and wished my colleagues a safe and restful summer, I was envisioning long days of reading broken up by an hour here or there with my hands in the dirt — weeding our garden, tending to our plants, and bringing in the fruits of our labor. I saw days on the beach of a great lake and others poolside with our granddaughters.

While I did manage to experience all of that, much of my summer was not what I was expecting. At all. Particularly not when, just a month ago, I was searching for an assisted living facility for my stepfather, helping my brothers move him in, being present for his rapid decline, then processing with my mom and siblings through his passing.

The flurry of activity was unanticipated and un-mooring. I’ve felt a little tossed about for several weeks, so the return to the rhythms of back-to-school prep of the past many days has been a welcome and anchoring exercise.

As I’ve been walking the hallways of our school buildings, I’ve been wondering if our students, too, have felt a little at sea. What has their summer been like — have they been working? helping out at home? have they had plenty to eat? time and space to rest? have they experienced loss? or trauma? joy? or celebration? Has their summer been what they were expecting? Are they, too, in need of the rhythms that will bring stability?

Because I’m not teaching this year, but rather supporting our teachers and students from a more global perspective, I’ve been managing tasks all summer like updating scope and sequence documents for various courses, familiarizing myself with the curricula taught in our building, creating Google classrooms for all of our teachers, updating our school’s testing plan, organizing and auditing the curriculum I created, and managing several other tasks. Over the last couple of weeks, I’ve also been preparing presentations and materials for the teacher orientation that begins this week.

As I’ve been checking all these boxes, I’ve needed some support (and grace) from my supervisors to reconnect with the world of school, to remind me what each of the pieces are exactly, to steady me as I find my way back to the vernacular of academics — to norms and standards, to unit plans and instructional strategies, to engagement and discourse.

I’m guessing that our teachers and students are going to need support (and grace), too. Certainly their summers have been far from the academic realm — less structured or predictable. Sure, some of them have punched a clock or had regular eating and sleeping habits, but many will have had no routine at all. Surely few, if any of them, will have sat in a desk, attended to a slide deck, navigated to a Google classroom, or submitted a document for review.

Transitioning away from my erratic summer to more routine work has not been easy nor has my body been quick to adapt. While I’m being quite diligent in getting back to eating three meals a day at the designated times and observing my normal bedtime, my body is still on high alert after weeks of urgent phone calls, last minute trips, and unexpected decisions. My digestive tract is suffering from role confusion, and my sleep patterns remain inconsistent.

Perhaps the bodies of my students and teachers, too, will be a bit out-of-kilter. Perhaps they will find it difficult to endure a seven hour school day, to sit upright for long stretches, to use the restroom at designated passing times, to make it from breakfast to lunch without a snack, to remember to get a drink between classes, or to stay awake for the entire day.

I’m finding a few things helpful in my regulation. First is seeing my people. As I’ve gone into our buildings over the last few weeks, I’ve reconnected with my colleagues, many of whom have offered hugs both of “I’ve missed you” and “I’m sorry for your loss.” We’ve shared stories and laughter as we’ve navigated our tasks.

I’ve found stability in the familiar — the drive, the building, and the faces.

I’ve found comfort in the physical — walking into my office, arranging my supplies, moving books, and touring classrooms.

I’ve found security in doing what I know how to do — creating a document, sending an email, meeting a deadline, planning a presentation.

I’m thinking about how I can use my experience of re-entry, my realization of what I’ve needed to re-acclimate, to support my teachers and students as they move from what also may have been erratic to what is more routine.

We already engineer the first week to be less about curriculum and more about connection. We are a trauma-informed organization, after all, and we know that Maslow comes before Bloom. We have a system of delivering school-wide norms and expectations, and we support teachers in integrating warm-ups, games, and getting-to-know-you activities. The first week is all about learning names and building community. It’s an opportunity for our students to get a literal or metaphorical hug– to reconnect with their teachers and classmates.It’s a time to situate themselves inside of the familiar — not only the building and its classrooms but the bell schedule, the movement patterns, the physicality of being in the space, and the kind of routine assignments that warm up muscles and build confidence.

How can I normalize the weirdness of it all — how our bodies and minds take time to adapt, how we may feel irritated, foggy-headed, tired, and out-of-sorts? The best way I know is to name it — call it out — talk about it.

Our teachers and our students may need the leaders in the building to acknowledge the heavy lift of transition — of moving from the summer-realm to the world of school. These worlds are not the same, and the move can be jarring. For me, back to school has always been a comfort — school is a place where I know how to be, what to do, and how to succeed — but it’s not like that for everyone. For some, school is an increase in stress, a place of conflict, a world of insecurity.

So, in my new role, I think one thing I can be is present — observing what is happening for teachers and for students, being willing to acknowledge that what they are experiencing is real. Of course you’re tired! Coming back to school takes a lot of effort! Yes, this is a lot of information to take it all at once, and our summer brains are not used to it.

I can also offer compassion. I get it! My body is still adjusting to the school day, too! I can cover your class while you run to the restroom. How can I support you in getting your documents completed on time? Would you like to tell me about what you are experiencing?

That’s the benefit of my role — I’ve got a head start on my teachers and my students. I have had a preview of what they might experience in the coming weeks. Now that I am feeling a little more stable, I can lend some of that to them as they transition. I can be a reminder that they will soon be settled in as well.

That, and I can make sure that my snack drawer is full, because I can bet that soon I will be hearing both teachers and students say, “Mrs. Rathje, you got anything to eat?”

I’ll be ready for them; I’m getting closer each day.

put on compassion, kindness, humility, gentleness, and patience. Colossians 3:12

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It’s complicated

The seemingly unintelligle words of hospice — one month, a few days, 48 hours, probably today — all started making sense and then were undeniable. My stepfather took his last breath in the early morning hours last Saturday. In the days that followed, we gathered, made arrangements, gathered again, handled details, cared for our mom, and came to terms with the fact that my stepfather, Roger, is no longer here.

We’re still working on that last part, of course, and for me, the essence of our relationship makes it little complex.

While many found him charming, Roger and I had what was often a prickly relationship. We didn’t agree on hardly anything — politics, the setting on the thermostat, the way to wash dishes, vacuum a floor, wipe off a table, or do just about anything. I found him to be demanding, opinionated, and critical. I often felt great irritation toward him over our 50-year relationship, probably because I always felt that he usurped the position that should’ve been held by my father who I have long-adored and often idolized, likely because he and I haven’t had many opportunities to interact on politics, the thermostat, or dishwashing.

Because of this complicated relationship with Roger, it came as a great surprise to me when I found myself feeling tenderness, compassion, and love for this man as he declined, as he lost his agency, as he forgot where he was, as he was unable to breathe, as he was confined to bed — a man who rarely sat still, who worked and golfed and bowled and rode a motorcycle halfway across the country. I was stunned to watch my heart shift from irritation to caring, advocating for, and comforting this man who has been an annoyance in my life for most of my life.

When my mom married Roger, she had four kids aged 8-14. He had two kids aged 8 and 10. Together there were three boys and three girls — just like the Brady Bunch, which was in vogue at the time. For a few years, the eight of us took vacations together and hung out together, but as we turned into teens and then adults, we were rarely together. In fact, my three birth siblings and I have only managed to all be together on a dozen or so occcasions in the last 30 years, and the six of us “kids” hand’t been together in the same room for close to 40 years before we all gathered on a Monday night for pizza a year ago.

Who knows how this happens — people are busy with their own lives, and if one person doesn’t act with intention, folks never come together. But last year we did, and then, miraculously, Roger took his turn for the worst just as we were scheduled to all be in the same state again this past month.

We all worked together — getting him moved in to assisted living, taking phone calls, running errands, and sitting by his bedside. We took shifts. His daughter, who claimed the overnights, fell asleep holdng his hand that last night, saying, “Good night, Dad. I love you” and reading him the 23rd Psalm.

We crammed in a small room at the funeral home — writing an obituary, picking out flowers, deciding on printed materials, then shared a meal with our mom, who kept saying, “I can’t believe this is happening.”

And then, on Wednesday, we all rolled in — the six kids, and our kids, and even some of their kids. Because of the nature of this complex family, some cousins met each other for the first time. Some nieces and nephews met their aunts and uncles for the first time.

Families can be like this, can’t they? Frustrations can lead to fractures and before you know it, you’re meeting your brother’s kids for the first time, marveling at their kids, and watching your own kids (and nieces) interact with their new-found family with curiosity and grace.

I probably won’t ever understand the complexity of Roger — why he was the way he was — but I can celebrate the fact that despite my irritation with him, he remained invested. He cared for my mom to the end (even if that in itself was complicated) and he cared for all of us in his own way, too.

Mom and Roger married when I was 10, and maybe because of “ew — cooties” or that previously mentioned loyalty to my dad, I rarely let Roger touch me — not a hug or a pat on the back, let alone a kiss on the cheek. So imagine my surprise when near the end, I found my hands on his waist steadying him, or when I agreed to scrub his back when he couldn’t shower himself, or when he grasped my hand to say goodbye, or when I kissed his head to reassure him when he was afraid.

We don’t know the love we have inside of us that is sometimes buried under hurt or anger or a little girl’s longing for her actual dad, but it is there, and it surfaces when it matters — when you need to sit beside a hospital bed, empty a urostomy bag, or say “I’m sorry this is what’s happening right now. I know you want it to be different.”

It doesn’t mean I don’t love my dad or that you could ever take his place. It means that I saw you show up and hang in there, even when I found you to be annoying, critical, demanding, and cootie-infested.

It’s complicated, that’s true. Much of life is.

Rest well, Roger, I’m pretty sure it was complicated for you, too.

Love one another. John 13:34

Rapidly-shifting Reality

Three weeks ago, I made a phone call. Just a simple call.

My stepfather had just returned home from the hospital again — I’ve lost track of how many times he’s been in and out in the past year or so — and this time he was prescribed 2L of oxygen to be worn 24 hours a day. He has COPD, among other health issues, and he’s been on a slow decline for a few years. When he came home with the portable oxygen tank, the nurse from the home health agency who had been doing weekly visits on my parents for the past many months, just happened to be at the house accompanied by her clinical director who planned to evaluate the need for more services. She saw my stepfather enter the house, assisted by my brother, and rewrote the script in her head.

She’d been planning to offer palliative care services to support him through this ongoing and prolonged illness, but when she saw how difficult it was for him to just enter the house, she suggested to my mother that perhaps it would be wise to enlist the help of Hospice. “It’s different now,” she said. “Hospice isn’t just for end of life; it can provide prolonged in-home care so that your husband doesn’t have to travel to the doctor or hospital any more. We can manage his care right here.”

My mom called me, told me what was going on, and I asked, “what do you think?” She admitted she could no longer do it alone, which my siblings and I had been suggesting for months. “Well,” I said, “it might be nice to have someone coming to the house regularly that can help us make decisions when it’s time to make other changes. Would you like me to call them?”

“I think so. She said so much. Maybe you can hear the details yourself.”

So, I made the call.

Hospice would be covered 100% by medicare. They would adjust their visits as needed. They would handle all medications and would assist us in the transition if the time came for my stepfather to move to a facility.

I called my brother, who has been the point man through our whole journey, and he agreed that I should set up an appointment.

Hospice came to the house the next day. We signed my stepfather up, and the visits began — a nurse, an aide, a social worker. The door on the house was continually opening, and my mother was overwhelmed.

The following Monday, I sat down at my desk to complete some tasks for work and texted my siblings. “Hey guys, hospice is up and running. I won’t be able to come this week or next to help out, but I will be available by phone.”

I opened some documents, started working, and then spoke to my husband, “I think I’ve gotta go up there.” No one had called. Nothing had changed, I just felt myself pulled to my suitcase and mentally moving toward my vehicle. I called my mom, “How about I bring you guys dinner and stay til tomorrow afternoon? I can just provide you with a little support.”

“I hate to have you drive all the way up here, but that would be great.”

By early afternoon I was on my way.

I brought dinner. We ate. I got them both their meds, did the dishes, and made sure they were all set for the night before heading to the guest room.

Around 4am I heard yelling. I ran to my stepfather. He’d had trouble standing to go to the bathroom and was having some respiratory distress. I administered his new emergency med regimen, then helped him stand. He stood right there by his chair for several minutes so he could catch his breath, and then slowly, so slowly, used his walker to get to the bathroom. It took us 20 minutes to travel 20 feet. Once there, he was unsteady — teetering. I had to use my body weight to brace him so he wouldn’t topple into the bathtub. He did what he came to do, then we stood there for a moment, so he could steady his breathing before the trip back to his recliner.

It had been an emotional event for both of us, and neither of us got any more sleep.

The hospice nurse came that morning. My brother, mother, stepfather, and I spoke with her about what options we had. If I hadn’t been there for the incident the night before, what would our 100 pound mother have done? The nurse suggested she send over the social worker that afternoon to walk us through some options. Also, since my stepfather was having difficulty standing up from his chair, she recommended we purchase a lift chair.

That afternoon, the social worker came and talked my brother, my mother, my stepfather, and I through our options. We could keep him at home and hire additional home health aides (we were already paying for eight hours of assistance a week), or we could move him to adult foster care, a nursing home, or an assisted living facility. But before we made any decisions, we needed, she said, to meet with a lawyer who specializes in elder law. Any of these options would be quite expensive and we should have guidance on how to protect our parents’ assets before we acted.

We had a plan of action, so my brother ran a mile down the road to our small hometown’s furniture store to purchase a lift chair. While he and my other brother arranged to bring it home, I ran to the pharmacy to pick up some prescriptions. We met back at the house, brought in the chair, and while all of us were rearranging furniture and tidying up the space, my stepfather attempted to move from his walker to sit into his new chair. Up until recently he had been independently getting in and out of his chair without difficulty, so none of us thought to stand near him, and down he went. We all rushed to see that he was ok, my brothers lifted him back to his feet and got him in the chair, and we all looked our new reality right in the face.

That reality would start changing day by day.

The next morning, the hospice nurse stopped by the house to assess any damage from my stepfather’s fall. We’d been up again in the night — for breathing issues, for trips to the the bathroom, for confusion. She examined him, found the cut on his arm from where he’d hit the coffee table and a large bruise on his backside from the point of impact. She assessed his breathing and other vitals then met my mother, sister-in-law and I in the kitchen.

She used words we hadn’t heard before rapid decline…24-hour assistance… and about one month. We tried to comprehend this adjustment to our new reality.

And the scramble began — some siblings investigating elder lawyers, the social worker and I investigating facilities. Phone call after phone call, text message after text message. Eventually a couple tours. Finally an open bed. Then digesting the cost, then agreeing to the terms. All the while, on-going conversations with my mother and stepfather about what is happening and why…over and over and over.

Four days after I had decided that I was too busy to go up to my parents and then pivoted on that decision and went anyway, we were loading my stepfather, his clothes, his walker, and his newly acquired lift chair into our vehicles and transporting him to his new residence.

He didn’t love it, but we couldn’t see another way.

That was two weeks ago.

Hospice has continued to use incomprehensible words…rapid decline, days, family should come.

Family has come. Someone is beside him now.

It won’t be long.

That’s a reality.

From his fullness, we have all received grace upon grace. John 1:16