Finding Space for Breath

When I wrote The Battle is On in August of 2014, I shared what I understood about autoimmune disease. I was new to the game (just a year or so in), and I was relying mostly on what doctors were telling me and what I was reading online. I wouldn’t say that I was wrong, but I would say that my understanding of autoimmune disease, from my perspective, based on my experience, has shifted greatly since that time. The longer I live in this body, the more I learn. In fact, my thoughts on the subject shifted again just yesterday.

Let me see if I can give you a picture of what I mean

I am confident that somewhere in the pages of this blog I have at least suggested that the current state of my body is a function not only of heredity and disease but also of the ways I have lived my life in these past fifty-seven years. Whether it came from my paternal grandmother, who had rheumatoid arthritis or from my mother, who has suffered with myriad maladies including persistent issues with her right hip (as do several other members of the family), I somehow inherited (and then passed on) the hla b27 genetic marker that is associated with spondyloarthritis which includes psoriatic arthritis, Sacroiliitis, and other autoimmune disorders.

Ok, so I had the genetic marker, but I also began a pattern of persistent emotional distress in my childhood and adolescence; such a pattern can heighten the likelihood that one develops autoimmune disease. Now, I wouldn’t say that I had a terrible childhood or that my parents subjected me to any kind of trauma. However, their divorce and the subsequent separation from my father was, to me, devastating. I did not know how to process the emotions I was feeling, and my adolescence was characterized by what I would now describe as raw, untended to emotion that was trying to find comfort or at least an outlet.

Over the years, I developed many strategies for dealing with that distress — lashing out, academic achievement, an eating disorder, and finally, a survival strategy emerged — my butt-kicking, name-taking persona. This girl set her jaw, clenched her fists, and got shit done. If emotional pain surfaced, she processed it through anger and aggression — at herself, at her family, at anyone who happened to get into her path. If things were moving smoothly, she was fine — reliable, productive, and focused — but toss in the unexpected — a change of plans, an alternate view, a noncompliant child or student — and she resorted to her soldier stance, bracing her body, lashing out with her words, and forcing everyone back in line.

It was a strategy that carried me through many years, but it led me to resist compassion, perspective, empathy — not only was I unlikely to give those things to others, I was less likely to receive them for myself. Now, let me say here that every soldier lets her guard down from time to time, and moments of vulnerability crept in — times when I held my children as they cried, when I recognized defeat in a student, when I allowed myself to share my pain with others — but those moments were the exception, I am afraid, and not as much the rule.

And while this soldiering lifestyle was an “effective” strategy, every choice has unintended consequences. I wish I was scientific enough to explain how my butt-kicking, name-taking persona required my body to produce adrenaline and cortisol and how, over time, the abuse of these hormones increased the likelihood that I would experience autoimmune disease, but I have an education degree, not a medical degree.

Suffice it to say, that what I have learned over the past 10 years, is that, at least in my body, the most effective strategies for reducing my experience of autoimmune symptoms are not medical, but they are a re-learning of how to manage my emotions, of how to live my life in a way that reduces or mitigates the adrenaline and cortisol in my body.

If you have followed my blog, you already know that pharmaceuticals were not the answer for me, although I tried many over the course of 3-5 years at great expense and with significant side effects. In fact, the only pharmaceutical I take now is one that I must take to prevent a flare of the ocular herpes I acquired while on a course of steroids. Sigh.

Because I was non-responsive to pharmaceutical interventions, all doctors except my ophthalmologist dismissed me as “not having autoimmune disease”. [For the record, my ophthalmologist shakes his head at this when he sees the evidence of autoimmunity in my eyes.] This dismissal, though, was a blessing, because it led me to explore other options for improving my health — options like submersing myself in a 95 degree salt-water therapy pool (which I highly recommend for those of you who are in the midst of a flare), practices like yoga and walking that allow my body to de-stress, habits like eating unprocessed foods that are free from gluten and dairy which often trigger symptoms in my body, and routines like seeing a therapist to learn how to more effectively deal with emotions.

And while I didn’t start this blog for the purpose of improving my health, it has had the unintended consequence of giving me a space to process so many of those emotions that little-girl-me felt, that soldier-me suppressed, that mom-me didn’t feel safe exploring. And, in the unearthing of these emotions, in the vulnerability of exposing them not only to whoever wants to read them, but more importantly to myself, I have created the space within my body to breathe.

And you’d be surprised the difference a little breath can make.

I’ve been learning about breathing since I started practicing yoga several years ago. At first I was like, what? we’re gonna just sit here and breathe? I was a former distance runner, if you remember, and I was used to pounding out 4-6 miles on a regular Tuesday, so this sitting still and breathing thing was very foreign. But, I was in a room full of people who were sitting there breathing, so … I breathed. Sitting still. For long periods of time. And, though I was unsure it was doing any good, I had to admit I felt better after yoga. And, I continue to practice yoga almost every morning for that reason.

But yesterday I took this breathing thing to the next level. A friend of mine, Lynnette Rasmussen, an experienced occupational therapist and PIlates instructor, was offering a virtual breathwork class and a handful of friends and I decided we would attend. I expected more relaxation but not much else.

I was surprised by the difference a little breath could make.

Lynnette guided us through an “ancient pranayama practice that uses an active 3 part breath that continues for 25-30 minutes, followed by a 10 minute relaxation” intended to “relax the mind and reach buried emotional or physical blocks and bring them to the surface.”

I was certainly unprepared for what I experienced — at first it was awkward, this weird breathing strategy, but then, once I found the rhythm, it was calming, and more natural, but then when we entered the relaxation — man, it takes great vulnerability to tell you this – I felt healing electricity coming through my hands as they rested on my body. I felt a deep understanding that God alone — not my practices, not pharmaceuticals, not pain clinics, not anything else — has the power to heal me. I rested on a yoga mat on the floor receiving any kind of healing that He had to offer me.

And that is what I have really wanted all my life — to receive the healing that only God can provide — and to accept that He will provide it in His time and in His way — not as I demand and not in a sense that I have to “believe to receive” but just in a way that He will surprise me with.

And over these last years, He has continuously surprised me — by closing medical doors, by tossing me in a warm salt water therapy pool, by showing me that my strength is not in a set jaw and a clenched fist but in vulnerability, by reminding me through a zoom room that He can, He is, and He will heal me day by day by day, sometimes with the simple power of breath.

I am overwhelmed by His grace.

Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, ²¹ to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen

Ephesians 3:20